Ethical Legal and Social Issues of Biobanking: Past, Present, and Future
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Summary
This article reviews some of the developments over the past 15 years related to the ELSI of biobanking with a look toward the future.
- Type
- article
- Published
- 2017-04-01
- Cited by
- 77
- References
- 165
- Access
- Open access
- OpenAlex
- https://openalex.org/W28375760
- Semantic Scholar
- https://api.semanticscholar.org/CorpusID:10578857
Keywords
Feedlot, Pest control, Habitat, Beef cattle, Ecology
References
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- American Type Culture Collection: A Model for Biological Materials Resource Management
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- 生物多様性条約 (Convention on Biological Diversity) 中間会合報告
- Activities of World Federation for Culture Collections (WFCC) World Data Centre for Microorganisms (WDCM)
- The Fungal Genetics Stock Center: from molds to molecules.
- Global scientific research commons under the Nagoya Protocol: governing pools of microbial genetic resources.
- Abstracts from the International Society for Biological and Environmental Repositories (ISBER)
- Recalibrated Linkage Map of Escherichia coli K-12
- Protecting Aggregate Genomic Data
- Return of genomic results to research participants: the floor, the ceiling, and the choices in between.
- International normative perspectives on the return of individual research results and incidental findings in genomic biobanks
- Science, government, and the mass production of penicillin.
- The Fate of Newborn Screening Blood Spots
- Dynamic Consent – A Patient Interface for 21st Century Research Networks
- Reforming Biobank Consent Policy: A Necessary Move Away from Broad Consent Toward Dynamic Consent
- Global Ex-Situ Crop Diversity Conservation and the Svalbard Global Seed Vault: Assessing the Current Status
- Yeast culture collections of the world: meeting the needs of industrial researchers
- Plant pathogen culture collections: it takes a village to preserve these resources vital to the advancement of agricultural security and plant pathology.
Cited by
- Current status of proteomics of soft tissue sarcomas
- Patients' Attitudes Towards the Return of Incidental Findings After Research with Residual Tissue: A Mixed Methods Study
- Die Vaskuläre Biobank – hands on
- Misplaced Trust: Building Research Relationships in the Age of Biorepository Networks
- Biobanking in a Challenging African Environment: Unique Experience from the SIREN Project
- Help, hope and hype: ethical considerations of human microbiome research and applications
- Brain banking in low - and middle - income countries: Raison D’être for the Ibadan Brain Ageing, Dementia And Neurodegeneration (IBADAN) Brain Bank project
- Responsiveness and adaptability in community engaged biobanking research: experiences from a Hispanic community
- Broad donor consent for human biobanks in Germany and Europe: a strategy to facilitate cross-border sharing and exchange of human biological materials and related data
- A Two-Level Biobank Data Protection Concept for Project-Driven Human Sample Collections
- Challenges that face the establishment of diabetes biobank in Jordan: a qualitative analysis of an online discussion forum
- The ISBER 2019 Awards
- Managing “incidental findings” in biobank research: Recommendations of the Taiwan biobank
- Biobanks in the Era of Genomic Data
- Beyond Genes: Re-Identifiability of Proteomic Data and Its Implications for Personalized Medicine
- Informed Consent in the Newly Established Biobank
- Raising to the Challenge: Building a Federated Biobank to Accelerate Translational Research—The University Biobank Limburg
- Biobanking as a necessary tool for research in the field of personalized medicine in the scientific medical center.
- Return of Individual Research Results: A Guide for Biomedical Researchers Utilizing Human Biospecimens.
- Biobanking for Genomic and Personalized Health Research: Participant Perceptions and Preferences
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