Misplaced Trust: Building Research Relationships in the Age of Biorepository Networks
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- Type
- letter
- Published
- 2018-04-03
- Cited by
- 6
- References
- 10
- OpenAlex
- https://openalex.org/W2795580762
- Semantic Scholar
- https://api.semanticscholar.org/CorpusID:4608561
Keywords
Biorepository, Informed consent, Biobank, Engineering ethics, Psychology
References
- Ethical and practical challenges of sharing data from genome-wide association studies: the eMERGE Consortium experience.
- Ethical Legal and Social Issues of Biobanking: Past, Present, and Future
- Public and Biobank Participant Attitudes toward Genetic Research Participation and Data Sharing
- Community Engagement in US Biobanking: Multiplicity of Meaning and Method
- Two Large-Scale Surveys on Community Attitudes Toward an Opt-Out Biobank
- Practical Guidance on Informed Consent for Pediatric Participants in a Biorepository
- Why do participants enroll in population biobank studies? A systematic literature review
- Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.
- Beyond Consent: Building Trusting Relationships with Diverse Populations in Precision Medicine Research
Cited by
- Grudging Trust and the Limits of Trustworthy Biorepository Curation
- Trustworthiness in Untrustworthy Times: Response to Open Peer Commentaries on Beyond Consent
- Disruption, Diversity, and Global Biobanking
- Manufacturing Life, What Life? Ethical Debates Around Biobanks and Social Robots
- The New Precision Stewards?
- Identification and Re-consent of Existing Cord Blood Donors for Creation of Induced Pluripotent Stem Cell Lines for Potential Clinical Applications
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