PedsQL Multiple Sclerosis Module Domain and Item Development: Qualitative Methods
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Summary
Qualitative methods involving 23 youth with pediatric-onset multiple sclerosis and 17 parents in the domain and item development process support the content validity for the new PedsQL MS Module.
- Type
- article
- Published
- 2021-05-28
- Cited by
- 4
- References
- 67
- OpenAlex
- https://openalex.org/W3164630668
- Semantic Scholar
- https://api.semanticscholar.org/CorpusID:235243663
Keywords
Multiple sclerosis, Content validity, Cognition, Psychology, Physical therapy
References
- Health-related quality of life assessment in multiple sclerosis.
- The PedsQL™ in pediatric cancer
- Emotions and the emotional disorders: a quantitative hierarchical perspective
- Longitudinal associations between MRI and cognitive changes in very early MS.
- A Prospective Study of Diet Quality and Mental Health in Adolescents
- The pediatric quality of life inventory: measuring pediatric health-related quality of life from the perspective of children and their parents.
- The PedsQL™ Multidimensional Fatigue Scale in young adults: feasibility, reliability and validity in a University student population
- Fatigue and quality of life in pediatric multiple sclerosis
- Health-related quality of life is reduced in pediatric multiple sclerosis.
- Relation between anxiety and depressive disorders in childhood and adolescence
- PedsQL Gastrointestinal Symptoms Module Item Development: Qualitative Methods
- Anxiety and depression in children and adolescents with spinal cord injuries
- Development of the PedsQL™ sickle cell disease module items: qualitative methods
- Fatigue and its relationships with cognitive functioning and depression in paediatric multiple sclerosis
- Onset of multiple sclerosis before adulthood leads to failure of age-expected brain growth
- Increased relapse rate in pediatric-onset compared with adult-onset multiple sclerosis.
- The use of focus groups in the development of the PROMIS pediatrics item bank
- The PedsQL™ 4.0 Generic Core Scales Young Adult Version
- Development of the Pediatric Quality of Life Inventory™ Eosinophilic Esophagitis Module items: qualitative methods
- Reporting of patient-reported outcomes in randomized trials: the CONSORT PRO extension.
Cited by
- Quality of life in pediatric-onset multiple sclerosis: Different disease course, different impact, different measurement approach needed.
- Assessing Nurse Competency in the Veterans Health Administration Registered Nurse Transition-to-Practice Residency Program
- The Use of Patient-Reported Outcome Measures in Developmental Age: A Complementary Tool for Pediatric Multiple Sclerosis Prognosis
- The Impact Of Medical Clowning On Emotional Regulation And Quality Of Life On Children In Onco-Pediatric Ward: A Pre-Post Intervention Study
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