Data protection and consent to biomedical research: a step forward?

Keywords

Parliament, Scopus, Data Protection Act 1998, Political science, European union

References

• Rare diseases and now rare data?Deborah Mascalzoni, Bartha Maria Knoppers, Ségolène Aymé — 2013
• Health research and systems’ governance are at risk: should the right to data protection override health?Concetta Tania Di Iorio, Fabrizio Carinci, Jillian Oderkirk — 2013
• European Parliament supports data protection reforms.Becky McCall — 2014
• Proposed EU data protection regulation is a threat to medical researchM. C. Ploem, M. Essink‐bot, K. Stronks — 2013
• Risks of the new EU Data Protection Regulation: an ESMO position paper endorsed by the European oncology community.P. G. Casali — 2014

Cited by

• The ethics weathervaneBartha Maria Knoppers, Ruth Chadwick — 2015
• Big Data in medical research and EU data protection law: challenges to the consent or anonymise approachMenno Mostert, Annelien L. Bredenoord, Monique C I H Biesaart — 2015
• Data donation after deathDavid Shaw, Julianne V Gross, Thomas C. Erren — 2015
• Biobanks, Data Sharing, and the Drive for a Global Privacy Governance FrameworkEdward S. Dove — 2015
• Tobacco control in China: still a long way to go.Shuangshuang Li, Chuanwei Ma, Bo Xi — 2016
• A step forward for data protection and biomedical research.Edward S. Dove, Beth Thompson, Bartha Maria Knoppers — 2016
• Rules for processing genetic data for research purposes in view of the new EU General Data Protection RegulationMahsa Shabani, Pascal Borry — 2018
• Comparable indicators of therapeutic misconception between epilepsy or Parkinson's disease patients between those with clinical trial experience and trial non-participants.Emmi Reijula, Arja Halkoaho, Anna‐Maija Pietilä — 2018
• Observational health research in Europe: understanding the General Data Protection Regulation and underlying debate.Evert-Ben van Veen — 2018
• The EU General Data Protection Regulation: Implications for International Scientific Research in the Digital EraEdward S. Dove — 2018
• Whose Commons? Data Protection as a Legal Limit of Open ScienceMark Phillips, Bartha Maria Knoppers — 2019
• Eine neue Generation des Datenschutzes? Gegenwärtige Unvollständigkeit, mögliche Lösungswege und nächste SchritteA. Martani, Patrik Hummel — 2021

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