Expanding the Frame of “Voluntariness” in Informed Consent: Structural Coercion and the Power of Social and Economic Context
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Summary
By extracting voluntariness from entrenched conceptions of the researcher–participant dyad, this paper proposes approaches to minimize the effects of structural coercion while creating new ethical imaginaries for review boards and researchers alike.
- Type
- article
- Published
- 2013-12-01
- Cited by
- 93
- References
- 115
- Access
- Open access
- OpenAlex
- https://openalex.org/W24552076
- Semantic Scholar
- https://api.semanticscholar.org/CorpusID:27903889
Keywords
Computer science, Visualization, Data mining
References
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- Rethinking the Ethics of Clinical Research: Widening the Lens
- Against Health: How Health Became the New Morality
- Narrating the New Predictive Genetics: Ethics, Ethnography and Science
- Playing God? Human Genetic Engineering and the Rationalization of Public Bioethical Debate
- Impure Science. AIDS, Activism and the Politics of Knowledge
- The Twilight of Equality? Neoliberalism, Cultural Politics and the Attack on Democracy
- The Professional Guinea Pig: Big Pharma and the Risky World of Human Subjects By Roberto Abadie Duke University Press. 2010. 200 pages. 79.95 cloth, 22.95 paper
- Therapeutic misconception in clinical research: frequency and risk factors.
- Co-ordinating 'ethical' clinical trials: the role of research coordinators in the contract research industry.
- The Truth about Drug Companies: How They Deceive Us and What to Do about It
- An Anthropology of Structural Violence1
- Empirical research on informed consent. An annotated bibliography.
- MONEY, COERCION, AND UNDUE INDUCEMENT: A SURVEY OF ATTITUDES ABOUT PAYMENTS TO RESEARCH PARTICIPANTS
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- More than mere survival: violence, humanitarian governance, and practical material politics in a Kenyan refugee camp
- Experiencing everyday ethics in context: Frontline data collectors perspectives and practices of bioethics
- Feeding and Bleeding: The Institutional Banalization of Risk to Healthy Volunteers in Phase I Pharmaceutical Clinical Trials
- The ‘empty choice’: A sociological examination of choosing medical research participation in resource-limited Sub-Saharan Africa
- Research on U.S. Military Women: Recruitment and Retention Challenges and Strategies.
- ‘I’m still a hustler’: entrepreneurial responses to precarity by participants in phase I clinical trials
- Randomisation before consent: avoiding delay to time-critical intervention and ensuring informed consent
- Risk and Emotion Among Healthy Volunteers in Clinical Trials
- You can go your own way: State regulation of oocyte donation in California and New York
- Retention Factors for Assistant Retail Managers
- The Obstacles of Valid Informed Consent
- Healthcare Executive Leadership Development and Succession Planning
- Consent: Coercion and Undue Inducement
- E-Business Strategy to Adopt Electronic Banking Services in Ethiopia
- Research Altruism as Motivation for Participation in Community-Centered Environmental Health Research
- Serial Participation and the Ethics of Phase 1 Healthy Volunteer Research
- Captive to the Clinic: Phase I Clinical Trials as Temporal Total Institutions
- An Ethical Framework for Organizational Resource Allocation for Patient Services in Health Care
- Multiple-level stakeholder engagement in malaria clinical trials: addressing the challenges of conducting clinical research in resource-limited settings
- How Civil Society Organisations Changed the Regulation of Clinical Trials in India
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